I’m joined this week by Sarah, the Afternoon Napper – as she calls herself. Our conversation revolves around her life with fibromuscular dysplasia, her lengthy diagnosis story, what it means to live with a rare disease, and how she’s been able to leverage social media to form a community around a disease that impacts a small number of people in the country. We also talk about Sarah’s dual identities (online) and how these identities are merging. Finally, we discuss Rare Disease Day and the importance of awareness before action. Enjoy.
Follow Sarah on Twitter at @AfternoonNapper and keep up with her many endeavors at: