Rather than focus on what I ate today, I thought it would be fun to share what everyone will be eating at our wedding reception tomorrow.
Here’s what our caterer is whipping up:
Pork Tenderloin with sauce and homemade rolls
Grilled Chicken with white sauce
Vidalia Onion Dip with Pita Chips or Wheat Thins
Vegetables and Dill Dip
Little Tomato and Bacon Sandwiches
Fruit and Cheese Display with Crackers
Bacon Wrapped Roasted New Potatoes
And there will be a special Shrimp and Grits table
It’s worth noting that we’ll be providing carb counts for everything, and stuff like the rolls will be separate to ensure we have as many gluten free items as possible. Planning a wedding for people with diabetes presents some fun twists.
Today let’s talk about changes, in one of two ways. Either tell us what you’d most like to see change about diabetes, in any way. This can be management tools, devices, medications, people’s perceptions, your own feelings – anything at all that you feel could use changing. OR reflect back on some changes you or your loved one has seen or been through since being diagnosed with diabetes. Were they expected or did they surprise you?
I would love to see the perception of diabetes change within the diabetes community. I think it’s too bold to ask that society at large have a better understanding for what this disease is and isn’t while the in-fighting between people impacted by type 1 and type 2 diabetes rages on.
I’ve noticed this back and forth return a bit on My Diabetes Secret. While it pains me to publish those types of submissions, they reflect the perspective of one, if not many of the diabetes community. It’s a shame that we can’t focus our energy outwards, but if that’s where their anger is directed, there’s only so much I or any of us can do.
Yesterday we kept stuff in, so today let’s clear stuff out. What is in your diabetic closet that needs to be cleaned out? This can be an actual physical belonging, or it can be something you’re mentally or emotionally hanging on to. Why are you keeping it and why do you need to get rid of it?
A few weeks ago I realized that there’s one particular physical manifestation of my diabetes that I haven’t taken out in quite some time: my sharps container.
Before switching to an insulin pump, I was filling these things up on the regular. Insulin pen needles take up quite a bit of space if you don’t keep track of everything. In San Francisco, Walgreens offer free sharps containers at their pharmacy, all you have to do is ask. Of course, with two people generating somewhere between twelve and twenty used insulin pen needles a day, I was exchanging a full container for a new one often. I’m sure the kind lady at our local Walgreens pharmacy thought I was quite the deviant.
But now, I’m only tossing in the needle that is used in a cartridge change every three-ish days.
Many of us share lots of aspects of our diabetes lives online for the world to see. What are some of the aspects of diabetes that you choose to keep private from the internet? Or from your family and friends? Why is it important to keep it to yourself? (This is not an attempt to get you out of your comfort zone. There is no need to elaborate or tell personal stories related to these aspects. Simply let us know what kinds of stories we will never hear you tell, and why you won’t tell them.)
It’s funny, despite having presences on a variety of social media platforms, my enthusiasm for sharing aspects of my diabetes life waxes and wanes. With efforts like #dayofdiabetes, sharing is paramount. But I can just as easily go a week or two without posting a Dexcom picture on Instagram or mentioning diabetes on Twitter. Outside of Dayle’s own diabetes experiences, I don’t necessarily consider anything off limits for the sake of keeping a piece of me private. Sometimes I simply don’t feel like sharing anything because I don’t feel like sharing anything. Boring, right?
In the UK, there was a diabetes blog theme of “I can…” that participants found wonderfully empowering. So lets kick things off this year by looking at the positive side of our lives with diabetes. What have you or your loved one accomplished, despite having diabetes, that you weren’t sure you could? Or what have you done that you’ve been particularly proud of? Or what good thing has diabetes brought into your life?
My initial response to this prompt is quite predictable, especially considering my upcoming nuptials. The thing is, finding the person I will spend the rest of my life with isn’t something I’ve accomplished despite diabetes, it’s because of diabetes.
For some reason, there’s been a lot of activity on My Diabetes Secret over the past few days. Actually, I should specify, there’s been a lot more activity than normal on My Diabetes Secret.
I keep an eye on the likes and reblogs to make sure I’m doing everything I can to ensure this blog reaches the people who need it most. Yet, for reasons I can’t decipher, the number of new followers has increased at a significant rate. I wish I knew what made this stuff “stick” with the diabetes community on Tumblr. I wish I knew what drives people to share, reblog, engage, and interact. I wish I could figure out why this entire experiment actually, kinda works.
My hope is that every single reblog represents a “me too”, and every single like represents a “I hear ya”. My Diabetes Secret isn’t a place to try and one-up the struggles of others, but the shared emotions are clearly connecting.
This week, Mike Lawson joins me for a conversation about the new and improved TuDiabetes.org, his new boss at the Diabetes Hands Foundation, the Big Blue Test, and the hidden glory of a single sign-on web presence. Enjoy.