The Informed Bubble

I saw a Facebook post from a parent celebrating the delivery of their child’s insulin pump and asking if Lantus would still be required once the transition to an insulin pump was complete. Of my many reactions to this, chief among them was confusion. Wasn’t it common knowledge that insulin pumps deliver basal and bolus? Isn’t this something that should be explained by a medical professional prior to filling out the paperwork and going down that path? If you’re sharing these sentiments on Facebook, shouldn’t you have learned this through DOC osmosis (DOCmosis?)? Wouldn’t you want to do as much research as possible before making a significant emotional and financial commitment to your child’s diabetes care?

But maybe that fact isn’t common knowledge. Maybe their endocrinologist didn’t take the time to explain the intricacies of pumping insulin. Maybe this is your chance to ask questions before things get real. Maybe I shouldn’t be so quick to judge.

Maybe I’m part of a hyper-connected portion of the diabetes community that seeks this information, that lives on the cutting edge of technology and discussion. Maybe I’m the anomaly, and the people who could use a little extra care and exposition shouldn’t be treated with the condescension that initially flashed through my brain.

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What are we doing here?

A couple of weeks after Medicine X, this poll was posed to the ePatient scholars:

Relative to your status as an ePatient:

  • I’m all in. Just trying to figure out how ot dedicate more time and energy.
  • I see myself as an expert, on par with highly paid consultants and speakers
  • I’ve been inspired by others, it’s helping me think of next steps
  • I have a lot to contribute, but not full time
  • I’m inspired to explore being an ePatient more, but still not sure what to do
  • I’m still on my own journey
  • The idea of being seen as an expert is foreign or intimidating
  • I’m new to all of this

If you could only choose one, which one would you choose?

I’ve commented on the thought that being an expert or thought-leader within the diabetes community terrifies me, and despite all outward appearances, I still have no idea what I’m doing here. But every now and then I come a little closer to refining and defining my role, as I see it, within the diabetes community.

I know there’s a broader conversation about how we can take the diabetes online community “offline”, and there are fine people working to that end. But I still think there’s more that can be done online.

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A Need to Read

I follow most of you fine pancreatically challenged folks on Twitter and/or Facebook, so I feel like I’m up to date on the happenings you share with the general public. But there’s something to be said for carefully crafted sentences and well-thought blog layouts.

I’ve been horrible about keeping up with your stories – and I feel like a horrible friend because of it.

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