Susannah Fox returns to the podcast this week to talk about her work at the Robert Wood Johnson Foundation, sharing her son’s food allergies with Stanford Medicine X, the rewarding challenge of engaging an audience on Medium, and a new exercise in empathy from people impacted by cystic fibrosis. Enjoy.
This week I’m joined by Emily Kramer-Golinkoff, founder of Emily’s Entourage. While we discuss her cystic fibrosis diagnosis, I learn what living with that disease is truly like. We also cover the origins of Emily’s Entourage, and the fundraising impact the Entourage has made in very little time. There’s also some talk about Medicine X and Emily’s plans for Cystic Fibrosis Awareness Month. Enjoy!
In making final preparations for this year’s Medicine X Conference at Stanford, I’m joined by Erin Moore. Erin is the mother of four children, one of whom lives with cystic fibrosis. We discuss her son’s diagnosis story, why she started blogging, and the diversity of her patient advocacy efforts. Later on in the podcast I learn about Collaborative Chronic Care Networks (C3N), Erin’s involvement in building a C3N for cystic fibrosis, and why Cincinnati is the best place for her family to live. Enjoy.