I’ve seen what My Diabetes Secret has done for the diabetes community. Every time a new secret is published, a resounding “me too” in likes and reblogs follow. Bringing these internal, emotional struggles to the surface has shed a new light on what it’s really like to live with diabetes. Managing that disease is more than just checking your blood sugar and taking your medication, and more and more people are starting to recognize the larger psychosocial challenges that come with living with a chronic disease.
With that in mind, I sought to expand the concept of My Diabetes Secret to other chronic disease communities. First among them is the chronic pain community and mypainsecret.com.
Previewing one of the many ePatient perspectives that will be shared at the upcoming Medicine X Conference in Stanford this Fall, Emily Bradley is my guest this week. We discuss her journey with chronic illness and chronic pain including, but not limited to, Still’s Disease, acute idiopathic scoliosis, endometriosis, secondary fibromyalgia, and Chushing’s Disease. We also discuss the value of social media in sharing her experiences and connecting with others in the patient community. And Emily shares her motivations for attending and her expectations of the upcoming Medicine X Conference in Stanford, where she will be one of the featured ePatients. Enjoy.