Finding someone who gets it is great. You don’t have to explain the basics. You don’t have to explain the details. Jargon and slang become the common language. It’s like being part of a secret society that happens to affect more than 29 million (diagnosed and undiagnosed, regardless of type) people.
But in order for them to “get it”, they have to go through the same struggles you do. They have to experience the fear, dread, anger, sadness, frustration, confusion, and maybe even depression. In order for them to get it, they have to have it. And that sucks.
I’m a firm believer in the power of “me too”, I just wish it didn’t come at such a cost.
And speaking of “me too”, it seems appropriate to reshare Kim’s Ignite Talk at this year’s Medicine X.