Stickiness

For some reason, there’s been a lot of activity on My Diabetes Secret over the past few days. Actually, I should specify, there’s been a lot more activity than normal on My Diabetes Secret.

I keep an eye on the likes and reblogs to make sure I’m doing everything I can to ensure this blog reaches the people who need it most. Yet, for reasons I can’t decipher, the number of new followers has increased at a significant rate. I wish I knew what made this stuff “stick” with the diabetes community on Tumblr. I wish I knew what drives people to share, reblog, engage, and interact. I wish I could figure out why this entire experiment actually, kinda works.

My hope is that every single reblog represents a “me too”, and every single like represents a “I hear ya”. My Diabetes Secret isn’t a place to try and one-up the struggles of others, but the shared emotions are clearly connecting.

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Presentation Deadline

I feel safe sharing this with you, because the people that need to hear this aren’t reading this blog.

My hope, coming out of my AADE presentation this summer, is that we can get those numbers to change.

To that end, I need your help.

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Reduce Stress and Anxiety

“Having diabetes can be very stressful, and it can bring out all kinds of emotions. Denial, depression, and anger are feelings many people with diabetes have experienced. When you’re first diagnosed, it’s normal to believe there must be some mistake. it’s also normal to be sad or angry over the lifestyle adjustments it requires. The inability to get beyond these emotions, however, can put your health in danger.”

Of all the things I wish I knew when I was diagnosed, I think this is at the top. I don’t remember ever feeling particularly “down” about my diabetes in the early years. Maybe jumping right back into my classes at Virginia Tech prevented any opportunity to truly contemplate what the future of my life would become as a result of this disease. With so much of my life undetermined, I think I just added this to the list of things I had to consider.

These types of nuggets of advice are always tricky for newly diagnosed. There’s so much information out there, it’s easy to become overwhelmed. If you perform an image search on the word “diabetes”, you’ll get the clichéd injection pictures next to amputations. If you look for non-medical perspectives on diabetes, there’s a whole mess of blogs, and patient communities to discover.

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Here Are Some Links Worth Clicking

My first piece for Quantified Self was published today. You can read it on Medium.

I started watching Daredevil on Netflix. This show is so good.

Heather Gabel is starting her PhD which will focus on studying the diabetes online community, and is looking for your input on what would be most beneficial for her to study and eventually share with us. Definitely worth checking out.

Tandem Diabetes has decided to not allow current t:slim users to upgrade to their new Dexcom-integrated pump when it hits the market. You can read their justification here. As you can imagine, I wasn’t very enthusiastic.

It’s a bit hyperbolic, but that’s what the Internet is for, right?

And, registration for the 2016 Diabetes UnConference is open. Highly worth considering, especially after hearing what Christel had to say about it on the podcast a few weeks ago.

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Counterproductive

Good morning. #dexcom #diabetes

A photo posted by Christopher Snider (@iam_spartacus) on

I sometimes wonder if sharing my Dexcom and blood glucose meter readings is counterproductive. Reminding other people with diabetes that they aren’t alone in their struggles or successes with diabetes is great, but what happens when I start to self-censor what I share because it’s not “good enough”?

If I have a few consecutive days out of range, sometimes I prefer to keep that to myself. There’s nothing wrong with a little privacy, but when I become explicitly aware of that need, I think it has a negative effect on my diabetes management. Something to the effect of “I’m not doing my best, I need to focus more on myself, but that focus means I’m not sharing with the community, and sharing helps the community, but I’m not helping the community if I’m not doing my best.”

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Enhancing My Diabetes Secret

I wrote this for My Diabetes Secret, but I figure it’s worth sharing here, too, since I repost a lot of stuff from that blog. For context, I’m constantly thinking about how I can improve My Diabetes Secret and My Chronic Disease Secret. Simply being is not enough. There are better ways to connect people with the blog, each other, and if necessary the proper resources they need. Am I doing everything I can to serve whatever mission I have in my head with all this stuff? Probably not, but I’m going to keep working to make it better. I can promise that much.

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That Went Well, #dayofdiabetes Edition

I’m incredibly proud of the turnout #dayofdiabetes garnered yesterday. There was a lot of a lot going on, but I think the net message was well communicated – this thing we do every day, managing this disease and staying alive, is not easy. And, the diabetes online community can be quite vocal when called to action.

I haven’t had an opportunity to dedicate enough time to look at all of the metrics, but here’s what I can share after a quick glance at some Symplur data…

  1. You all showed up. Big time. 2,248 tweets from 362 users. For reference, last year’s group #dayofdiabetes effort (April 10, 2014) generated 1,495 tweets from 275 users.
  2. Compared to last year, total impressions more than doubled. From 2,600,626 in 2014 to 5,349,262 yesterday.
  3. It should be noted that total #dayofdiabetes data received a significant bump from the #dsma chat that took place last night, thank you Cherise.

What I want to look at, for my own curiosity, and in anticipation of my upcoming AADE presentation is the overall makeup of the participants in both yesterday’s and last year’s #dayofdiabetes. How many patients shared their day? How many health care professionals engaged with and encouraged their peers to follow along? How many brands promoted the hashtag? How many brands abused the moment to promote something?

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