The Me Too Conundrum

Image (linked) captured from My Diabetes Secret

Image (linked) captured from My Diabetes Secret

Finding someone who gets it is great. You don’t have to explain the basics. You don’t have to explain the details. Jargon and slang become the common language. It’s like being part of a secret society that happens to affect more than 29 million (diagnosed and undiagnosed, regardless of type) people.

But in order for them to “get it”, they have to go through the same struggles you do. They have to experience the fear, dread, anger, sadness, frustration, confusion, and maybe even depression. In order for them to get it, they have to have it. And that sucks.

I’m a firm believer in the power of “me too”, I just wish it didn’t come at such a cost.

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The One Where The Diabetes Community Crashed The FDA

Unfortunate? Ironic? Awesome? All of the above?

Unfortunate? Ironic? Awesome? All of the above?

I think the biggest sign that you’re on the right track in engaging a community in a collaborative discussion is when that community shows up in numbers so overwhelming, your livestream crashes and (apparently) cripples the entire FDA network.

Or as Jenny McCue of HCMStrategies put it,

If you live with diabetes, know someone who does, or even if you’ve seen a movie with someone who has diabetes in it, then you know the disease sneaks up on you. It hits you when you want it the least. Outside of the amazing response our community showed, having the FDA system crash and have to keep going is one of the most persuasive testaments we could have delivered.

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Marveling at Marvel

This has nothing to do with diabetes. It has everything to do with how well Marvel has executed their digital strategy over the past week, even with unexpected hazards along the way.

(which was debuted early because a low-res version leaked a week ahead of schedule.)

And then today…

9 new movies announced.

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Feedback Loop

Since I’ve started sharing my journey to acquire, complete training on, and ultimately manage my diabetes with an insulin pump, I’ve been receiving all kinds of feedback across various social mediums. Thank you for that. One interesting comment that keeps popping up is a sense of surprise at my patience through all of the hoops and hurdles I’ve encountered along the way. A number of people have added that they didn’t have to wait nearly as long as I am to start pumping insulin, be it immediate training, or skipping training altogether. If possible, I’d like to take an informal poll here, to round out this particular branch in this discussion.

If you’ve ever worn, or are currently wearing an insulin pump: When did you start wearing your first insulin pump? How long did you (have to) wait after you received your first insulin pump before you started on insulin? Did you meet with a CDE before hand? Did you jump in without formal training? What additional resources, if any, did you consult in your first weeks?

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Connections

In light of some of the conversation happening on and around My Diabetes Secret, Cherise decided to use the platform she built to address some of the topics presented without giving an opportunity for the negativity to invade the weekly tweetchat.

One afternoon a car pulled up next to me and the driver rolled down his window gesturing to get my attention. He was holding up a small electronic device that turned out to be a Medtronic insulin pump. He wanted to say hello after seeing my license plate.

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What You Make Of It

I had a lot of thoughts about this comment. I asked Twitter for feedback and got some good responses there. I also shared this on Facebook and got some good feedback there as well. I felt like writing more, but then Dayle and Kerri said all I wanted to say. So you should just read what they wrote.

Finally, I would urge anyone blogging for recognition to consider if a blog is really the right outlet for their goals/needs. Blogging is a form of sharing what it is you want to say. It’s not necessarily a platform for making people pay attention. That’s their choice. If your words or your way of changing the world resonates with other people and is valuable to them, they will listen. And that’s what it should be about – not conferences or freebies.

Defining the DOC: Why Do We Blog? – Imperfect Pancreas

Also

I started this site because I wanted to find some kindred spirits.  And that’s the reason I continue to write, and to try and connect.  It keeps the loneliness of chronic illness at bay and makes doing this diabetes maintenance thing easier.  Even though so many healthcare professionals think that my A1C is the most important marker of my success as a person with diabetes, I think my happiness is, and connecting with my PWD peers keeps me happy.

You Are HERE. – Six Until Me

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