Through a series of unfortunate miscommunications between me, my local Tandem Diabetes representative, my endocrinologist, and a diabetes education center, my journey with an insulin pump has been significantly delayed. Up until this past Monday, I had been assured that the only training I needed prior to pumping insulin would be from my Tandem representative. The morning of my hypothetical appointment with the rep, less than 30 minutes away from beginning to program my basal rates, I received a phone call from my rep saying that my appointment with the diabetes education center had to come first, that their “pump start” class was mandatory for my endocrinologist’s patients that are new to pumping, and I would need to follow up with them on the necessary paperwork.
As of this blog post’s publishing, my insulin pump is sitting in its original box, buried in our closet of diabetes supplies behind boxes of insulin pen needles I can’t wait to leave behind.
And in non-Medicine X news. Continue reading
Over the next few days I’ll be tweeting up a storm at Stanford Medicine X. Follow my comments on Twitter – @iam_spartacus.
As far as the rest of the diabetes community is concerned, Dana Lewis will be talking about the digital divide among patients and the DIYPS. Scott Strange will be on three different panels discussing mental health and chronic disease patients. And Kim Vlasnik will be giving an ePatient Ignite Talk on the main stage. You can also follow Heather Gabel on Twitter as she shares her experiences during the conference.
If you would like to see Kim’s talk live, please sign up for the Global Access Program so you can watch the livestream from the comfort of your own home.
Medicine X is a big deal to me, as can be evident by its inclusion in the menu bar of this blog, if you have the time, I hope you take a look.
I thought you and your community might be interested in this video:
Where do I begin? Continue reading
I met my new endocrinologist and CDE today. The short version goes something like this: I love everything about them. And I’m getting a t:slim. And I feel great about everything.
Tell ‘em Stanley.
The longer version requires a some fragmented thoughts and sentences. Continue reading
Depending on how tomorrow goes, this could be the last time I completely finish a Lantus pen. Depending on how long it takes to process an order for a new t:slim insulin pump and complete my training, I could be using Humalog as both a basal and bolus insulin. Depending on how long everything takes, I can start saying goodbye to persistent overnight lows followed by extreme cases of dawn phenomenon (which, at this point should just be called dawn certainty).
Tomorrow I meet my new endocrinologist. Tomorrow could be the beginning of a new phase in my diabetes care. I have high hopes.
This week I’m joined by Mary Rooney to discuss being the first participant in a T-Reg Clinical Trial. Don’t worry if you don’t understand what that is, as Mary does a great job of explaining the trial, how she learned about it, her results, and how others can learn about clinical trials relative to their personal interests. We also talk a bit about Mary’s diabetes diagnosis, moving to San Francisco, and her promising career as a child psychologist. Enjoy!
For more information about clinical trials, you can visit trialnet.org and clinicaltrails.gov.
You can contact Mary at mary dot rooney at ucsf dot edu