As you hopefully read, the reaction to Miss Manners’ idea of manners was a bit of a mixed bag. The vitriol wasn’t as bad as anything I’ve seen from the gaming community, but it wasn’t exactly PG at times.
The idea, as the title suggests, is that if you spare a rose in the bouquet of flowers you will (likely) buy your significant other for Valentine’s Day, and donate that money to Life of a Child, a child with diabetes will get insulin for a month. If you decide to spare a whole dozen, that means a year of insulin.
In trying to think of the best way to equate the cost of your donation, I tried looking up things $5 can buy. My thought process was that if you went without [thing you can spend $5 on] just once, that money can go to a great cause.
This search led me to http://hackthemenu.com/. Now I know prices vary by region, but for the most part (based on this site’s data, so take that with a grain of salt) we’re talking about skipping one trip to Starbucks so a child in need can have enough insulin to live for another month.
Diabetes Art Day is February 3rd. I’m not sure what I’m going to do to contribute to the fun, but I know that spreading the word needs to be part of my participation. So here I am; and here we are.
If you’ve never heard of Diabetes Art Day, I encourage you to go to http://www.diabetesartday.com/ and look at past galleries of submissions from all walks of life impacted by diabetes and their artistic representation of what this incurable, evil disease is like.
It’s an excellent project, hosted by a wonderful woman and great friend, Lee Ann Thill. Go check it out.
Everyone else has done such a great job recapping specific moments of Medtronic’s Diabetes Advocate Forum that it would be foolish to think I could add anything else to that narrative. But there has been one prominent, lingering theme that I’ve taken away above all others: listening makes all the difference.
Medtronic made it an early mission to articulate that they have heard all of the feedback surrounding their launch of the 530g with Enlite, specifically the problem with calling a device an Artificial Pancreas Device System: Threshold Suspend with an audience that will only read/hear “Artificial Pancreas”.
They also did an admirable job of hearing our feedback. Most of the time a simple “we hear you” is all you will get out of Presidents, Vice Presidents and other similarly impressive job titles. But we got more than that. Instead of slides and “any questions?”, we were interjecting thoughts and feedback throughout the day’s conversation. Topics that were worth revisiting, of which there were many, were added to the “parking lot” and given follow up time at the end of the first day.
If the early bird gets the worm, the procrastinating blogger gets the opportunity to recap and link to blog posts covering a similar topic rather than recreate the wheel. Besides, they did a much better job than I could have after 36 hours of decompression.
There will be a lot of conversation coming out of Medtronic’s Diabetes Advocate Forum. Some of it about the event. Some about what we can do as a community moving forward. Others will take inspiration from a moment or quote and illustrate what all of this advocacy stuff means to them. I’ll compose my thoughts soon enough, but for now, here is an excellent list of posts to get you started.
I’ll be attending Medtronic’s Diabetes Advocates Forum for the next couple of days. They have paid for my flight, food, and lodging.
They have not, however, paid for my opinions on the event or my comments throughout.
They couldn’t afford me anyway.
I’ll be tweeting a lot over the couple of days using the hashtag #MedtronicDAF. Follow along, and let me know if you have any questions. There is an impressive level of access at this event considering the number of Vice Presidents, Directors, and other important Medtronic folks participating in the conversation.
Kerri wrote a book. I know this because I helped contribute to one of the chapters. I also know this because I was forwarded a link to her book on Amazon, so you know it’s legit. I also know this because I received an advanced copy and am reading it right now (well, after I finish posting this). I’ll have more formal thoughts on it later, but for now I can happily confirm…it’s really good.
In other news, I may have created a new diabetes-based Tumblr or two over the weekend. I need to figure out how to best approach them, but I’m determined to figure out how to use that platform to engage the diabetes community. People get Twitter and Facebook, and there are plenty of blogs out there, too. But Tumblr sits in a weird limbo between those platforms. And so I will continue to experiment until I strike gold.
Courtney Slater joins me this week to talk about her life as a Certified Diabetes Educator and Registered Dietitian, how career has impacted her life with diabetes, and just as importantly how her career has not impacted her life with diabetes. We also talk about her dog’s Facebook profile and why Des Moines is more than a fly-over city. Enjoy.