Here’s a Thing I Wrote for Symplur

This one looks at how different patient communities approach the new year, to what extent goals and resolutions are shared, and what makes for an open conversation among these communities.

Here’s a snippet.

While the how much question is worth considering as you engage this data, I think it’s equally important to look at the how. How were these communities prompted to engage with the topic of goals and resolutions? How well did those prompts foster a conversation among their respective communities? How might we evaluate the different approaches to this topic and find the optimal way to encourage goal setting and sharing?

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Head Down

I’ve got to put my head down to work meet some deadlines on a few projects I’m working on. In lieu of sharing some story remotely related to my life with diabetes, I found a few things on Tumblr that are worth re-sharing that may put a smile on your face.

Form follows Function (Source linked)

Have a good Thursday.

Category Changeout

Longtime followers know that I am never satisfied with the layout of this blog. I’m constantly evaluating new themes and sidebar configurations in search of something better, or at least more optimal. I really wish I could settle on one idea for an extended period of time, and I feel like this current iteration is a great step towards satisfaction, but I still can’t stop.

To that end, today I’ve adjusted yet another back-end type setting, my post categories. I’m pretty sure I’m the only person who notices this stuff – and even though I’m calling it out right now, I’m sure it will continue to go unnoticed. But I feel like I, and this, has grown beyond ‘Wilford Brimley’ type classifications and call it what it is: life with diabetes. I haven’t completely grown out of that type of “humor”, but I am growing up a bit. At least now I can outwardly show (or prove) it if necessary.

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The Result of Turning Off Notifications

Over the past few months I’ve taken pointed efforts to reduce the time I spend staring at my phone. While social media is great, and ensuring all my emails are marked as read is a worthwhile goal, I wasn’t doing a great job of living in the moment. So I turned off nonessential alerts on my phone. Twitter, Facebook, Instagram – the apps themselves stayed on my phone, but their frequency of use dropped as the number of times my phone updated in the background decreased.

I’m still not sure if that’s enough to get me back in the moment, but I’ve certainly felt detached from the diabetes community as a result of these efforts. Recently I’ve made somewhat public statements that it felt like the community was shrinking or changing, but I wasn’t looking in the right direction for an explanation.

This is the result of my own actions. So now the challenge is to find a way to continue to embrace and engage the diabetes community, but in a healthy way.

This should be interesting.

Happy New Year

Now that 2015 has begun, let’s take a quick trip down memory lane. Still hard to believe I will have been in California for a full year on the 4th. This time last year I was on the road with two cats and a ring. Look at us now!

In January, I arrived in California. And she said Yes.

I read Kerri’s book in February. It’s quite good. (And I’m in it, too!)

I updated the look of the blog, again, in March. I’m going for professional, yet fun. I think I’ve pulled it off moderately well.

I addressed the great divide that exists within the diabetes community, and is sometimes exacerbated by My Diabetes Secret.

In May, finally, I began the search for a new endocrinologist. Finding someone who would work with me in my pursuit to getting on an insulin pump was key. I think I chose wisely.

June was quite busy. We bought an aquarium. My blog received HONCode certification. And the diabetes community presented at Scientific Sessions.

Stuart Scott’s ESPY speech feels like an appropriate thing to reshare in light of his untimely passing.

I joined the Walking Gallery. And went camping.

Stanford Medicine X happened again, this time with me on the Advisory Board. That was fun.

I started pumping insulin for the first time, ever. And I took my CGM to the Cloud. Technology!

The diabetes community crashed the FDA, which despite how that may sound, is quite awesome.

And I started a collaboration with the folks at Symplur, because data is beautiful.

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Slowly Fading

Maybe it’s because of the holidays. Maybe it’s because we are focusing more on side projects. Maybe it’s because Facebook and Twitter are becoming the standard for communication. Maybe I just need to be better about finding new content. But the Diabetes group in my Feedly Reader feels abandoned.

The number of blogs without a recent update becomes too much to count with fingers and toes, and I can’t help but wonder what is happening to the diabetes online community?

The truth, of course, is that we are stronger than ever. Connections are forged, found, and maintained on a variety of platforms and we are accomplishing great things together. Seeing what happens online conversations moving offline is great, it’s one of the universal efforts of the members of the diabetes community I look to and up to. And I know it’s unrealistic to have every medium hosting diabetes conversation maintain its relevance over the years. I just wish there was more.

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