Just Talking with Cherise Shockley

I spend the next hour catching up with Cherise Shockley, founder of the Diabetes Community Advocacy Foundation. We discuss how her life has changed after getting a dog, the unexpected value in having a second grader take a personal finance class, the calculated growth of the Diabetes Community Advocacy Foundation (DCAF), and knowing when to establish healthy boundaries. Enjoy!

You can learn more about DCAF diabetescaf.org and be sure to follow Cherise on Twitter @SweeterCherise.


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Camping Preparations

Later this year, for my birthday, Dayle and I are going camping. I said I wanted a new lens for my camera and I wanted to go somewhere where I could really use it. Now we’re going camping somewhere (she hasn’t told me yet), and I get to prepare for things like no cell phone service for 4 days, and keeping food secure so wild animals don’t get to it (or us). If you read snark in that previous sentence, you are mistaken. I’m really excited.

But this also means we have a lot of preparations to make before we become one with nature. First and foremost, we need gear.

After a trip to REI and some best-price shopping on Amazon, I’m happy to report we are on our way.

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Just Talking about mySugr

Kyle Rose, mySugr’s Managing Director for North America is my guest this week. We cover Kyle’s work with mySugr, the complexities of an international business with respect to localization and government approval. As well as covering the basic of the mySugr suite of applications, I also ask about the future of mySugr and do my best to learn about future product updates without getting Kyle in trouble. There’s also, for reasons I cannot explain, some mention of Cornell’s A Capella scene. Enjoy!

You can learn more about mySugr at mysugr.com and by following them on Twitter @mySugr.


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This And That

Seems like a lot has happened over the past week that I didn’t really get a chance to comment on for one reason or another. Now’s as good a time as any to bundle all of those notes into one post, right? Right.

Get authentic patient voices in the room. To lead change in health care, organizations must get in the room the voices of real patients – people whose lives are touched by our products and services. “What It Really Takes to Listen to Patients” – Harvard Business Review

Then there’s this:

And this:

This came from yesterday’s “Design for Health” class at Stanford.

And to balance out the serious…

And.

Now if you’ll excuse me, I have to prepare for Captain America: The Winter Soldier. Dayle got us tickets smack dab in the middle of the theater. She’s the best.

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Thank You For Registering For Medicine X

Full Disclosure: As a member of the ePatient Advisory Board for Stanford Medicine X, I receive a full scholarship to attend. That said, I’m super excited to officially be part of the 2014 conference. I even took the liberty of updating my profile for the conference program.

This will be my third year attending Medicine X. When I first applied in 2012, I didn’t know why I would be worthy to attend a conference held at Stanford, featuring patient advocates that I knew, respected, and felt that I couldn’t hold a candle to.

In the months after Medicine X 2012, I began to understand my role as a patient advocate and respect the fact that everyone has a story to tell. And every story is worth telling. With that mantra guiding me, I applied for and received an ePatient Scholarship to attend Medicine X in 2013.

Now I’m back, this time as a member of the ePatient Advisory Board. I still believe that everyone’s story is worth telling, and I continue to search for ways to empower and connect with voices and perspectives within patient communities – often focusing within the diabetes online community. Kindred spirits with busted pancreases and all.

And now that the initial abstracts for presentations and panels has been published, there’s even more reason to anticipate this year’s conference.


You can expect more talk about Medicine X as September approaches. Among the many meaningful and noteworthy moments in my journey as a patient advocate, Medicine X is one of the stand outs. Without this conference, this blog would be a rambling mess of cat pictures and nonsense. Now, it’s a rambling mess of cat pictures and nonsense with an occasional call to action or moment of clarity in the busy world of patient advocacy, with a side of patient engagement.

I’m not an authority on any of the stuff I write about here, but conferences like Medicine X help define, refine, and focus my thoughts in ways I never thought possible. This is a big deal for me. If you think it could be a big deal for you, registration is open now.

PS. I know the registration fee might look daunting. Even if you didn’t get a scholarship to attend, there are other options. Just a thought.

Just Talking with Karen Chu

This week I welcome Karen Chu, host of Good Job, Brain!, back to the podcast. We talk about the growth Good Job, Brain!, the excitement of meeting fans face to face, how she and her co-hosts have put a creative spin on sponsorship. We also discuss Karen’s cosplaying rules for Disney Marathons, because running 13.3 miles isn’t enough of a challenge. Finally, we spend a few minutes talking about her work at Twitch and fun moments like “Twitch Plays Pokemon”. Enjoy!

You can follow Karen on Twitter at @momopeche, listen to her podcast Good Job, Brain! at goodjobbrain.com, and learn more about Twitch at twitch.tv.


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