Do you ever have days when you care too much about your diabetes, yet nothing seems to go your way? Do you ever have days when you care too much about your diabetes, and all that hard work pays off?
Do you ever have days when you don’t care about your diabetes, and your blood glucose numbers perfectly complement your apathy with wildly out-of-range readings? Do you ever have days when you don’t care about your diabetes, and everything goes swimmingly?
Do you ever have a day when you experience all four of those mindsets, and struggle to find balance – to find normal?
When you’re about to embark on a 3-state tour for the holidays.
Dayle is rejoining the Verizon network on our new family plan.
And I’m going to be reading a lot more. A. Lot.
As the end of 2014 approaches, Parris Lilly joins me to talk about the year in super hero movies, Destiny, GamerTag Radio, and being a football dad. There were plenty of other tangents, segues, and one-off mentions as well – at this point, it’s par for the course. Enjoy.
Follow Parris on Twitter @vicious696, and check out gamertagradio.com to catch up on the latest in independent video game podcasting.
I realized last night that a number of “firsts” will be crossed off of my diabetes accomplishments during our upcoming travel adventures.
- First time dealing with TSA and an insulin pump
- First time estimating pump supplies I will need for an extended trip
- First time sharing my insulin pump, in person, with my parents
- First time not worrying (as much) about snacking
It’s curious to feel like my diabetes may be ‘new’ for a moment or two. I suppose, in the grand scheme of things, it is new. Even though I’ve been living with this disease for 12 years, I’ve only been pumping insulin for a couple of months. While I’ve made progress and improvements to my diabetes management since starting on a t:slim, my basal rates and correction factors still need tweaking.
It’s a shame I had to go through everything I did to get that ‘new’ feeling back again. It feels strange to call diabetes ‘exciting’, but that’s what this is: excitement. I’m excited to share my new gadget. I’m excited to see how different this year’s travel will be compared to previous years. I’m excited to have something positive to say about my diabetes.
You can decide which excited gif works best to end this post, but I still default to Kermit.
Image (linked) via giphy.com
Today marks my first official day as Patient Community Advocate at Symplur. This means I get to look at all kinds of data collected by Symplur’s extensive tools and figure out ways to bring the patient communities into these data-based conversations. This means I get to venture out into the scary world of freelancing with a mighty first step. This means I get to take on new projects that could help impact and shape the future of online disease communities. This means I have a chance to truly contribute to something – to one day look back and say “I built that”.
It also means I get to write blog posts using data provided by their reporting tool, Symplur Signals, like this one about World Diabetes Day and the #wddchat14 hashtag. And I get to create fun animated gifs like this one
Created by me, via symplur.com (linked)
It’s a shame “when you get it right, you don’t have to worry about overnight high or low alarms and can get a full night’s rest…until the cats wake you up” can’t be a back-of-the-box selling point for insulin pumps. Because when you get it right, and you don’t have to worry about overnight high or low alarms, and you can get a full night’s rest…until the cats wake you up, is the best. Seriously.
The path to refining and redefining the person and patient advocate I want to be is ever-present. There will always be something I want to change, improve, or tweak – but the challenge now is figuring out how to focus my efforts. With that in mind, I’m considering this the next step in simplifying who I am – online, at least.
It’s not exactly a crowd-pleaser, but it’s the most basic representation of what I’m about. Between this and the unified starting point, my hope is that 2015 will start off in the right direction. Or, I’m too concerned with my “image” and need to stop obsessing about these things.