I’ve been avoiding the clips of Age of Ultron over the past few weeks. I’m going to see that movie, so I’d rather experience as much as possible for the first time on the big screen. This shielding effort will likely become more and more difficult as Tumblr gets ahold of new assets to share.
But, let’s talk about some other movies – because yay!
If “we’re home” didn’t put a smile on your face, check your pulse.
Image (linked) via giphy.com
I’m incredibly proud of the turnout #dayofdiabetes garnered yesterday. There was a lot of a lot going on, but I think the net message was well communicated – this thing we do every day, managing this disease and staying alive, is not easy. And, the diabetes online community can be quite vocal when called to action.
I haven’t had an opportunity to dedicate enough time to look at all of the metrics, but here’s what I can share after a quick glance at some Symplur data…
- You all showed up. Big time. 2,248 tweets from 362 users. For reference, last year’s group #dayofdiabetes effort (April 10, 2014) generated 1,495 tweets from 275 users.
- Compared to last year, total impressions more than doubled. From 2,600,626 in 2014 to 5,349,262 yesterday.
- It should be noted that total #dayofdiabetes data received a significant bump from the #dsma chat that took place last night, thank you Cherise.
What I want to look at, for my own curiosity, and in anticipation of my upcoming AADE presentation is the overall makeup of the participants in both yesterday’s and last year’s #dayofdiabetes. How many patients shared their day? How many health care professionals engaged with and encouraged their peers to follow along? How many brands promoted the hashtag? How many brands abused the moment to promote something?
Christel Marchand Aprigliano is my guest this week to talk about all things Diabetes UnConference. From the origins, to planning, from execution, to lessons learned, we cover everything. Plus, we discuss the scheduled 2016 conferences, Christel’s 5 and 10 year plan for the UnConference, and revisit her podcast from many years ago, Diabetic Feed. Enjoy.
Follow Christel on Twitter @theperfectdblog and theperfectd.com.
For more information about the Diabetes UnConference, visit diabetesunconference.com.
Tomorrow, April 15, I’m encouraging anyone who wants to participate to live-tweet a day in the life of a person with (or caring for someone with) diabetes. Use the hashtag #dayofdiabetes to keep track of everything, and I’ll do my best to Storify everything on http://dayofdiabetes.tumblr.com.
As a community, we’ve done this a few times, and I think each day has been more successful than the last in terms of outreach and impact. I’m hoping tomorrow will be just as meaningful for some of you.
In case you need a reason to join the fun, here are seven reasons that might do the trick and get you to participate.
- You can find new people in the diabetes online community to connect with. These group efforts are a great way to make new friends.
- It may help get over burnout. Sometimes a focused effort like this is just what you need to get back into the diabetes frame of mind.
- Sometimes an exercise like this can help remind you that this may not be easy, but you’re doing just fine keeping this disease in check. When you step back from all the tweets and realize just what it takes each and every day, that can be something you can be proud of.
- Help describe what it’s like to your friends and followers without diabetes. Sure, they may have an idea, but a play-by-play like this is quite effective at showing what it’s like, even if it’s only for one day.
- Consider each tweet a teachable moment. Together, this is an incredible educational opportunity. And that excites me.
- I’m going to bring back the first point I made, because like #dblogcheck, these community exercises are a great way to expand your network of diabetes connections. I would love to hear stories months from now that start with “I saw someone share their #dayofdiabetes and decided to participate. That was the first time I mentioned my diabetes on Twitter.”
- Selfishly, I need data. I’m speaking at AADE this year about Twitter metrics from the diabetes online community, specifically #dayofdiabetes. I would love to show up with some fantastic data from all of you to compare to last year’s efforts.
The theory is simple, tag your posts on Twitter, Facebook, Instagram, and any other place you frequent with #dayofdiabetes, and let me know about it. I’ll curate everything at http://dayofdiabetes.tumblr.com.
I saw my endo today. I tried so hard to drop every necessary hint for her to see how depressed I am. She didn’t understand. She told me to try harder. She asked what motivates me. The truth is, I don’t know. You’d think wanting to live would motivate me, but if even that doesn’t work, what ever will?
Shared on My Diabetes Secret
I feel like I really need to talk to someone, but every time I start to tell a friend about how much I’m struggling, they change the topic or ignore it completely, so I’ve stopped trying to open up to people because the reality is, no one cares enough to listen.
Shared on My Diabetes Secret
How might we provide better venues and avenues for people to share what they are feeling? When they need help most, are “we” failing the diabetes community?
I took this picture almost a week ago, and I still don’t know how I feel about it.
From a global perspective, all diabetes is a very serious issue. Lifestyle changes, including diet, can make an impact on some people’s life with diabetes. But for the people who, despite their best efforts, must succumb to genetics one way or another, is this advertisement supposed to motivate them? Is it even aimed at them? With such limited real estate to make a point, there’s hardly any room for fine print and clarifications.
One one hand, I understand the direct, sometimes shocking nature that’s required to get someone’s attention. Without their attention, how can you expect anyone to take action? But I fear that efforts like this do more to harm and reinforce stigma and stereotypes than inform and enlist new advocates in the fight to do whatever the ultimate call to action is.